Of Mice & Men Singer to Fans: ‘I’ll Never be Better’ from Marfan Syndrome

By Hayden Wright

Of Mice & Men’s Austin Carlile has posted a candid series of tweets about his struggle with Marfan syndrome, a genetic disorder of connective tissue that causes chronic pain, among other long-term health issues. In the posts he expressed frustration with fans who seemed unhappy about concerts he has postponed due to his illness.

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“All of you saying I should hurry up & get better what’s taking so long,” he tweeted. “I’ll never be better. you happy? I live EACH DAY as it comes. each day is a battle. Marfan Syndrome is a fibrostic connective tissue disorder, that means it affects your ENTIRE BODY, and IT. IS. PAINFUL.”

“I don’t cry on Twitter on all the bad days. I suck it up & keep pushing on,” Carlile continued. “The rare good days?!… I CHERISH those more than you could ever understand. & I wouldn’t wish it upon anyone. This is why I have such a heart for those hurting, mentally OR physically, because I. AM. TOO.”

Carlile then took some time to answer fan questions about the condition. One follower asked about the status of a “cure” for the disease.

“As of now theres NO cure for Marfans, symptoms are treated as they come. injuries, dilated aortic valves, arthritis, etc,” he wrote.

Chaka Khan took note of his Twitter activity, calling Carlile a “profile in courage and strength.”

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